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Thursday 28 September

09:30-10:00 Welcome/cultural contribution

10:00-11:00 Keynote: International human rights protection and the distribution of health care – Brigit Toebes

11:30-12:30 Panel discussion: The future of European Health Law

 

14:00-15:30 Parallel session 1/Workshop

O1 Legal regulation of medical professional discretion in prioritisation of health care services in Denmark and Norway – exploring similarities and differences – Henriette Sinding Aasen

O2 What does Transparency means in the Health System? – Vugar Mammadov

O3, Mental competence as a threshold for equal access to healthcare services – Yana Litins’ka

O4, Health Rights of Internally Displaced Persons: Problematic Issues from Ukraine – Ivan Demchenko

O5, A model for optimizing the work of ethics committees in the healthcare system in Bulgaria: an instrument for more effective distribution of healthcare services – Nely Plamenova Gradinarova

O6, The Case of Csoma v. Romania. Legal and ethical considerations on the Informed Consent Issues – Maria Aluas

O7, Access to Innovative Healthcare Services – Poland’s Legal Perspective – Katarzyna Mełgieś

O8, End of life: promises and challenges of palliative care – Maria Elżbieta Sokalska

O9, Ensuring access to pain control and palliative care in Europe – experiences from Latvia and moving beyond” – Marie Elske Caroline Gispen

O10, Human rights protection and public health assessment in relation to late diagnosis of rare diseases – Mariela Svetoslavova Deliverska

O11, Why Tracey is bad law (and worse medicine) – John Rumbold

O12, European Governance of health and health care: a critical appraisal – Henriette Roscam Abbing

O13, The EU response to serious cross-border public health treats – Stefania Negri

O14, Professional standards, clinical guidelines and medical liability – Athanasios Panagiotou

O15, Safe, innovative and accessible medicines in Europe: a renewed strategy for patients and pharmaceutical sector – Annagrazia Altavilla

 

16:00-17:30 Parallel session 2/Workshop

O16, An Unjustified Restriction? The Significance of Plain-Packaging for Tobacco Products – John Lombard

O17, Access to patented medicines in low-income countries: is EU law efficient in order to implement international obligations? – Joaquin Cayon-De Las Cuevas

O18, Personalized medicine – good or bad news for equitable access to health care services – Mette Hartlev

O19, Healthcare fraud in Europe: towards a common European approach? – Jos Boertjens

O20, The Belgian and Dutch legislation governing healthcare professions and the phenomenon task shifting – Ellen Vanermen

O21, Balancing risks and benefits of experimental interventions offered on ‘compassionate use’ basis – Joanna Karolina Rozynska

O22, Cost effectiveness and patient choice as ‘Leitmotifs’ in the distribution of healthcare. Example: the English NHS – Maria K Sheppard

O23, Public costs coverage of social egg freezing in Italy: perspectives of resources allocation for Public Healthcare Systems – Luciana Caenazzo

O24, Should single persons have the right to access (publicly-funded) fertility treatment? – Atina Krajewska

O25, Legal challenges of medically assisted reproduction: Discussing the Ukrainian experience, searching for international responses – Radmyla Yu. Hrevtsova

O26, Research Exemptions from Consent: Respecting the Fundamental Right to Data Protection – Menno Mostert

O27, From data silos to open science: are ethics and regulators lagging behind? – Evert-Ben van Veen

O28, Balancing research needs for broad consent and research participants’ interest in privacy – Irene Schlünder

Friday 29 September

09:00-10:00 Keynote: EU rules concerning access to health care – Markus Frischut

 

10:30-12:00 Parallel session 3/Workshop

O29, 3D printing – the regulatory challenge of personalised medicine from a patient’s perspective – Maria K Sheppard

O30, Should We Regulate the Unregulated? OffLabel Drug Usage, Adverse Reactions and Children – Nicola GloverThomas

O31, Distributing healthcare for the ageing population through e-health. The ’Swedish vision’ examined – Titti Mattsson

O32, Advanced Therapy Medicinal Products (ATMP) – challenges for the integrated regulation network – Tiina Titma

O33, Implementing the right to know one’s own identity in European legislation – Katarzyna Blanka Robak

O34, Adressing genetic issues and non-discrimination instruments: An overview of regulation and raising risks – Juan Ignacio Ochagavías

O35, A duty to recontact: futuristic or realistic? – M.C. Ploem

O36, Patients’ rights to access crossborder healthcare in Ireland and the challenge of Brexit – Brenda Daly

O37, Cross-border Healthcare in the EU: Implementation of European Legislation in Austria and Germany – a comparative approach and its relevance for a border-region – Verena Stühlinger

O38, Towards a Better Management of Differences among the Member States of the European Union in the Protection of Classical, Individual Patients’ Rights: Exploring Legal Solutions at International and European Union Level in the Light of the European Union’s Directive 2011/24 – Lisette Bongers

O39, Fair Access to Clinical Trials for Incompetent Subjects under the new EU Regulation No. 536/2014 – Joanna Karolina Rozynska

O40, Biobanks: Trends and perspectives – Andreia Da Costa Andrade

O41, The WMA Declaration of Taipei (2016): a new regulatory benchmark for health research databases and biobanks at international level – Gauthier Chassang

O42, The main features of data protection in Biobanks in Europe – Jean Herveg

O43, Biological samples collections as goods subject to property rights? – Thibaut Coussens Barre

O44, Banking autologous cord blood: shall we open or close the pandora’s box? – Allane Madanamoothoo

O45, EU data transfer rules and international legal realities: is transcontinental data exchange for biobank research realistic under the GDPR? The case study on bridging biobanking in Europe and Africa – Santa Slokenberga

 

13:00-14:00 Parallel session 4/Workshop

O46, The Prioritization of Health Care Services in Finland – Reima Palonen

O47, Access of vulnerable groups to health care services through Serbian legal regulation and in practice – Marta Sjenicic

O48, Distribution of reproductive health services: Laws and policies on foreign aid can reduce access to care – Dean Harris

O49, Access to free of charge supply for medicinal products, medical devices and foodstuffs intended for particular nutritional uses for 75+ beneficiaries in the Polish health care system – Anna Jacek

O50, Biotechnological Innovations, Personalized Medicines and Increasing Healthcare Costs for Pharmaceutical Products – Do “Pay for Performance” Systems Provide a Solution? – Claudia Seitz

O51, EU big data protection at risk – Gustavo Merino

O52 Horizontal and Vertical Differences Between the GDPR and U.S. Healthcare Data Protection – Nicolas P Terry

O53, Challenges of the new EU Regulation on the Protection of Personal Data in the Czech Health Care System and Legislation – Ondrej Dostal

O54, Introduction to the general data protection regulation – Jean Herveg

O55, Outsourcing genomic data: trust in the untrusted – Griet Verhenneman

14:30-15:30 Keynote: Which criteria to use when prioritizing in times of scarcity? – Steven Lierman